What should Asthma UK do to help people with allergies?

Asthma UK's Chief Executive, Neil Churchill

Neil Churchill - Chief Executive

29 Jun 09 | 2 comments
Tagged: Allergy Show, eczema, allergic rhinitis, food allergy, anaphylaxis

Commentators say there has been an ‘explosion’ of allergies in recent times.

The causes are debated but whatever the reasons, a high proportion of people with asthma also have allergies, from eczema and allergic rhinitis through to food allergy and risk of anaphylaxis. Certain kinds of allergy have also been identified by clinicians as a risk factor in sudden asthma deaths.

A visit to the Allergy Show at Olympia recently showed how many people need advice and support in managing their allergies. The hall was humming with people and conversation and most of the stalls including our own were doing a brisk trade. Information is a vital tool in self-management and many people visit the Allergy Show to see what’s available.

Sadly, however, there are all too few places to get help. Charities like the Anaphylaxis Campaign play an important role and do what they can but they have limited budgets and the NHS is simply woeful on allergy, as the House of Lords report demonstrated. There are some excellent allergy doctors but unless you have been referred to a consultant, you’re likely to be steered straight to the nearest chemist.

Despite many people having common allergies, few are able to get a diagnosis through their doctor.

People with more serious allergies should get a diagnosis but may find their lives restricted by a lack of consumer information and a lack of understanding of how allergies impact on everyday lives.

It took a combined effort to persuade the NHS and Department of Health to do more about asthma – but at least the basic infrastructure exists within the NHS to manage asthma effectively.

We have much further to go with allergy.

Are you affected by allergy as well as asthma?

Do you find the lack of information, diagnosis and support frustrating?

Where do you see the gaps? And where are the opportunities to do better?

What above all do you think Asthma UK should be doing?

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buteyko'd my asthma

21 December 09
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Asthma UK should look at the strong links between hidden hyperventilation & the triad of excema, hayfever & rhinitis as well as anaphalaxis. Hidden hyperventilation is where one breathes excessively depending on level of activity. At rest, one should not hear or see (use of shoulders or upper chest to breathe) that you are breathing. People with asthma &/or allergies should retrain themselves to breathe through their nose whilst talking, sleeping & exercising as well as coughing, sneezing through their nose rather than mouth (vastly reduces spread of infections too), fight their coughs, sniffs,snorts and sighs & cough through their nose. NB in and out breath both through the nose. For people who have found nasal breathing helpful (just switching to nasal breathing gives about 25-30% of gains from buteyko breathing technique) they have noticed a huge reduction in this triad of seemingly unrelated side-effects. If the correct method & exercises are then followed to reduce the volume of air breathing slowly and carefully to a new rate (diaphragm breathing rather than the typical upper chest breathing) that becomes the bodies new "normal" rate then often people no longer suffer from these symptoms & indeed their asthma. Whilst the results from trials are both disputed & uneven, there is great merit in further pursuit of a solution in this area. More people should be informed that the correct way to breathe, without question is through your nose. It is amazing that the new "normal" way of breathing is through the mouth. This reduces the nose to an empty vessel that quickly becomes blocked by mucus build-up & the lack of regular breathing encourages polyps to fill the void. This leads to further sinus problems, a belief that ones nose is permanently blocked & the cycle of ever deteriorating symptoms & consequent spiral in treatment required continues. We should encourage people to try breathe less not more, at a reduced volume not deeper.Exercise is not encouraged enough!

ClaireOB

2 July 09
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Something that could be very helpful for people with asthma and for parents/carers of children with asthma would be to have guidance about when they should be asking for specialist allergy diagnosis and advice. For example, lots of people, it seems to me, soldier on with more than one conditon in the atopic triad of asthma, eczema and hayfever but never really get to the bottom of what is driving these conditions or are properly informed about the implications of allergy for asthma control. This can result in poorer asthma control and, in a few cases, might leave people vulnerable to a fatal attack, as reported in this sad case of a young mother's death in 2005 - http://www.belfasttelegraph.co.uk/lifestyle/bt-woman/i-vowed-to-raise-him-as-my-own-14376826.h tml . She had been thought to be mildly asthmatic but in the days before the fatal attack was apparently struggling a bit due to hot weather-induced hayfever. A GP relative recently attended a paediatric allergy/asthma event in Scotland which included education about why/when atopic co-morbidities need to be taken seriously and when referrals for specialist advice and diagnosis are warranted. She found it very helpful but in Scotland, as in the rest of the UK, there is serious underprovision in secondary and tertiary allergy care, as documented by the recent Review of Allergy Services in Scotland. So, perhaps Asthma UK could help on two fronts: informing about when an allergy diagnosis should be sought and also aiding the efforts of other allergy organisations and the National Allergy Strategy Group (NASG) to promote the case for better allergy provision in primary, secondary and tertiary care.
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