What does good asthma control look like?

Neil Churchill - Chief Executive

17 Dec 09 | 7 comments
Tagged: Consultation, NHS

One of the most shocking things I have heard on the asthma consultation roadshow so far has been people’s expectations of good asthma control.

On Saturday in Liverpool, our facilitator asked how many puffs of a blue inhaler you should expect to use in a week.

Clinical guidelines suggest that if you take three or more puffs a week, you are not well controlled. In fact, doctors and nurses aim for people to have no symptoms and no use of a reliever inhaler.

But at the event, most people reported very different expectations. Several thought getting through one blue inhaler a month was perfectly normal, and was compatible with good asthma control.

Of course I recognise that people with severe asthma will not be able to live free of symptoms and can rely on a bag full of medicines to keep asthma in check.

But those without severe asthma should have much higher expectations. Something is going badly wrong if clinical guidelines suggest most people can live without symptoms, but patients assume it is normal to get through a blue inhaler – the equivalent of 200 puffs – every month.

It made me think that Asthma UK – and the NHS - needs to do much more to tell people what good asthma control looks like and what they should expect when they go see their doctor or nurse.

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ClaireOB

21 December 09
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What Neil and others are reporting from the consultations chimes very much with what I've encountered personally, i.e. that there is very low awareness of the fact that using your reliever inhaler more than 3 times per week can be a sign of poor control, with all its attendant risks. In fact, in 2005 I made a bet with myself that if I met anybody with what they perceived as mild/moderate asthma or a parent of such a child, who was aware of the 'over 3 puffs/week' threshold, I'd donate £10 to A Good Cause. 2006 came without call to donate my £10, I'm afraid. A common perception I came across was that it was ok to use the blue puffer up to 4 times per day: a few people insisted that they had been told by their doctor that "you can't overuse salbutamol". I tried to explain that there is a difference between how much you need during an exacerbation as opposed to daily asthma control, which seemed to be where this confusion was arising. This message clearly needs better communication. I was impressed, a couple of years ago, when an older relative was diagnosed with adult onset asthma in London. His GP wrote a plan, which along with information on what to do about symptoms, also had a bit saying that the aim was control with minimal use of reliever. Perhaps asthma plans would be one means of communicating the "3 puffs and you might be losing control" message. And, I would have thought that it should be possible to keep tabs electronically on a patient's prescriptions for reliever inhalers and to have some kind of system prompt if these exceed expected levels?

george71

20 December 09
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hi all, i went to the consultation at Stanstead airport, and on our table was hearing the same as you Neil, too many people seem happy to live with regular symptoms becaquse they believe it is ok to cough or wheeze or have difficulties doing everyday things because they nhave asthma, this is so not right, all but a few asthmatics should as you say be able to live normal active lives, there needs to be a big campaign to highlight what people should expect from their lives with asthma. GEORGE XX

tosie

19 December 09
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I suspect that we all feel guilty about troubling the dr with our asthma. So often by the time you get to the surgery you are clear and have to try and explain why you are there.At the moment I am taking about 24 puffs of blue a day and still cannot bring myself to face doctor idiot that I am

me

17 December 09
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I think it has a lot do do with 'shut up and put up'. I get the impression that a lot of people think that as long as they are getting by and their asthma doesn't have too much of an impact on their lives, taking a few puffs of blue inhaler each day isn't a problem- when there are other treatments available that could reduce this.

cathbear

17 December 09
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You make such an important point, Neil, and it's something I agree with wholeheartedly. It's a difficult task though, to raise people's expectations when they are so low (compared to the RCP/BTS definitions of good control) and are sometimes re-enforced by poorly education health professionals.

Lucy007

17 December 09
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Like many others, I'm often told, your chest sounds clear so you're fine. Just after I'd been in hospital for the 2nd time within 12 months I was told I was generally well controlled even though I was seeing massive quick onset peak flow dips + a 6 week chesty cough when I got a virus, inspite of following my plan and upping medication.

woody-som

17 December 09
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this doesn't surprise me. My aunt has a constant cough, but she ignores it, and ended up in hospital on monday in a severe condition. I've mentioned it before, but the asthma nurse has always said she's fine. clearly people don't know good control
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